Back to HoboBen's Blog ( Created 10 January 2009 | Last Edited 10 January 2009)|
Off topic post ahead!
|Posted : Saturday, 10 January 2009, 04:18|
|I know two people who have got M.E. One is a friend, and the other is my sister. My sister never left the house for about a year either, and she sleeps most of the time. My friend Howard, seems to have grown out of it though. But like you say, the medication is f***ing expensive.|
I also have a sleeping disorder, but mine is apparently linked with depression and severe anxiety and paranioa.
Good to hear you are starting to feel better Ben, I hope you make a full recovery
|Posted : Saturday, 10 January 2009, 05:57|
|Wow. I had no idea things were that bad for you.|
I'm glad to hear you're feeling better, no matter what the cost.
Kinda puts my "Phone costs too high" rant into perspective!
|Posted : Sunday, 11 January 2009, 07:04|
|Posted : Sunday, 11 January 2009, 08:08|
|They have only recently recognised it as an illness, but as there's no "proven" cure or treatment yet (I'd only heard of NADH a week or so ago) you can't get the medicine through the NHS... Until just over a year ago you could get the CoQ10 prescribed for free - before New Labour's privatisation of the NHS started and they've stealthily taken a huge amount of medicine off.|
But the tablets are worth it though - I feel fantastic!
|Posted : Sunday, 11 January 2009, 08:46|
|Are the tablets a life-long thing, or will you remain cured after taking them for a time period ?.|
|Posted : Sunday, 11 January 2009, 08:51|
|Hopefully after a month I can start gradually cutting down on them and eventually do without. That's the plan, anyway. |
|Posted : Sunday, 11 January 2009, 12:23|
|Are they just for people with M.E ?|
Could they help me with my sleeping disorder ?
|Posted : Sunday, 11 January 2009, 12:52|
|Good to hear you're feeling better. |
|Posted : Sunday, 11 January 2009, 13:20|
I was 60% deficient in Q10 (and NADH is an important part in using Q10 and was especially designed as a ME treatment), and I suspect that this is common for most ME sufferers... so exactly the cure for what I had.
I don't know what would be causing your disorder, but Q10 is supposedly a great thing to take for energy anyway (the government has even been thinking about adding it to the water supply because of the benefits - here's the wikipedia Q10 article).
Is your sleeping disorder causing extra sleep or preventing you from sleeping?
It might be a good idea to try the stuff anyway because it has so many benefits and see what effect is has. I'm taking a huge dose; 5mg of NADH a day and 30mg of Q10 a day is more typical (and cheaper!). If it turns out that it helps, Boots are doing a 3 for the price of 2 offer on Q10 and I think they might be doing one on NADH too.
Really, there's a lot of experimenting to see what works. I was taking a handful of vitamins and drinking 13 types of soluble metal salts for a while with no effect.
There are a few things I have a feeling might help you specifically though - Brewers Yeast (I took that for a while) is supposed to help with several things, including sleeping disorders (and is really cheap to buy, too). It's supposed to work with Niacin which interestingly is used to make NADH in the body. Niacin is incredibly hard to absorb (I was taking 2,500% of the RDA with no effect!) and unless you take the expensive kind it causes side effects like burning. So NADH, being the first stable absorbable form of what niacin is used to make... perhaps a combination of Brewers Yeast and NADH might really be a big help to you.
So, yeah, I think it's worth experimenting for a bit. Hopefully you can get this disorder sorted Good luck!
edit: If you do buy brewer's yeast, try to get one with added vitamin B12 if you can - it's the only B vitamin it doesn't contain.
|Posted : Sunday, 11 January 2009, 14:06|
|Anxiety, panic attacks, and depression are the cause of my sleep disorder.|
I have absolutely no sleep pattern. Some times I can sleep for almost 2 days, most of the time I don't sleep, I just sort of drift in and out of consienceness and then pass out through exhaustion, then I wake up abruptly sometimes causes a panic attack.
On rare occasions, I sometimes get normal sleep, but when I wake, I normally get very tired, especially when I sit in front of the computer, or watch TV.
I friend of mine also mentioned something about Q-10, so I might give that a try.