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Socoder -> Health Matters -> Nnnngh... PIP

Posted : Saturday, 16 February 2019, 07:28
Jayenkai

Nnnngh... PIP


Oh, FFS..



(Where the score is based on Higher=Worse Condition)

This again..

They have, at least, awarded me my PIP at a lower (half) rate, so Mum can claim for Carer's and we at least have money coming in, so .. thank fuckity..

But they've awarded me no Mobility because "I can plan and follow a journey unaided"..
.. which, given the very next thing THAT THEY WROTE claims that I can't go unaided for more than 200 meters, must mean I'm planning a journey to.. maybe the bathroom??

Fucksake..

Will be fighting this decision, but hopefully it won't need an entire sodding tribunal, this time.

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Posted : Saturday, 16 February 2019, 07:47
rockford
Definitely appeal.
Posted : Saturday, 16 February 2019, 07:51
spinal
Surely they have on record that you took them to court last time and by that fact alone, that are wrong in their decision.

Just unbelievable.

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Posted : Saturday, 16 February 2019, 09:09
steve_ancell
It does good to get a welfare-rights worker to go along to an assesment with you, if you can, those assessment goons are proper liars.
Posted : Saturday, 16 February 2019, 09:16
steve_ancell
100 percent you will get it overturned on appeal, most people do.
Posted : Sunday, 17 February 2019, 09:24
Pakz
Doug from the soundtestroom on youtube lost his income also iirc. He had to sell a lot of his stuff. With apple stopping the income for linking apps to the store did not help either.

Over here in holland there are signs that they are moving towards putting more invalids in welfare. Companies (who employed them before) who insure their income now do not want to pay for them. Meanwhile every day on this planet a new bilionare is created.
Posted : Monday, 29 April 2019, 14:16
Jayenkai
Reassessment letter finally arrived, and again they've decided not to award mobility disability.
Apparently I'm perfectly fine crossing a road, and nipping to the shops..
I've been out of the house once, this month, and that was to a fucking funeral. Yeah, perfectly fucking fine and dandy, me..

Gawd.. that "lifelong disability" petition's sounding pretty good, right about now,,

On we go, to CAB, see what they suggest..

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Posted : Friday, 24 January 2020, 08:53
Jayenkai
Got my tribunal date. 11th Feb.
And yes, it HAS taken them that long.

Can't stress how much we've been scrimping and saving, for the entire pissing year.
Hopefully things go well.. :/

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Posted : Friday, 24 January 2020, 09:33
Pakz
The last elections where Boris Johnson won is not really a good sign for things getting better for people for disability!
Posted : Friday, 24 January 2020, 09:59
Jayenkai
Indeed...
Posted : Tuesday, 11 February 2020, 03:56
Jayenkai
Well.... That was a waste of a morning.

"Not enough evidence" - tribunal postponed whilst they complain to my doctor.

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Posted : Tuesday, 11 February 2020, 19:33
Jayenkai
2:30. Wide awake, thinking...
That guy at the tribunal's right.
Even knowing "I'm on my own, there's nothing they can do to fill the hole in my head", my GP should've at least sent me to have a scan, every so often.
He's not done a thing for me.

... I'm really quite annoyed, right now..

I shouldn't have to pester the doc to get a CT scan.

The fuck kinda lazy-ass GP have I got?!

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Posted : Tuesday, 11 February 2020, 19:46
rockford
Just because your GP didn't send you for a scan doesn't mean that you aren't disabled. Scans wouldn't confirm disability.

Did your specialist not advise having scans upto a point where they weren't necessary? I'm pretty sure you would have had at least one following your procedures. That may have been enough to confirm that the initial problem hadn't returned, but again, wouldn't clearly show how you would be affected by the illness and subsequent procedures.

An OT report is far more valid for than a scan anyway. Have you had any Occupation Therapy assessments? Ask for an AMPS assessment if not - https://www.sralab.org/rehabilitation-measures/assessment-motor-and-process-skills

These fucking pencil pushers will try to find any reason not to pay you what you should be entitled to. Don't let them get into your head. You ARE disabled. You aren't able to live an active, independent or "normal" life. You have had to adapt your lifestyle as a result of your illness.
Posted : Tuesday, 11 February 2020, 21:42
Pakz
I wish countries would try and aim to cure people. Spend time on discovering new medical threatments and medicine to get people back into a healthy life. It seems all I read is that everyone needs to work no matter the situation. I have been taking medicine that were discovered in the seventees! I believe. These have quite a bunch of negative effects. Sometimes when I take them a little late I can not even operate a rower. My motor skills just take a dive.

They recently made a breakthrough with Down Syndrome were they were able to make the brain function as if it were normal, this by using medication. They tested it on mice and need to test it on people next.
Posted : Tuesday, 18 February 2020, 05:33
Jayenkai
Finally got to that doctor's appointment.
We discussed my lack of evidence for a good 10 minutes or so. Apparently he can't "just send me for a CT Scan", without good reason, but he suggested that if he refers me back to Neurology, that they "might" be able to do something.
He wasn't happy about doing it, up until I said to him ... "If you had a brain tumour removed, wouldn't you like to get it checked after 5 years?"
.. Then he sat in silence for a minute or so, and started searching for ways to get it done.

So.. I think *something* is happening, but .. who knows what!
Have to wait for some kind of feedback from whoever this neurologist is, now.

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Posted : Tuesday, 18 February 2020, 06:12
rockford
Sometimes, doctors can be the stupidest people around. I have to deal with them regularly - I see what they do (or don't do, that they should)...

Fingers crossed.
Posted : Tuesday, 18 February 2020, 06:45
Jayenkai
As long as they don't actually find anything... ... scary bit..

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Posted : Saturday, 07 March 2020, 11:56
Jayenkai
Tribunal Part 2 set for 25th March. Hopefully we get a bit further this time.
Although it was too late to send updated info in to the Tribunal folk, I did at least get to chat to someone at Salford Royal Neuro last week. There's been back and forth between him and my GP, notes about further bad balance issues, things like that. So, we'll be taking all that stuff with us.
The guy who's helping us (from the Town Hall CAB folk) has said that, although it's "new information", it's further information about a previous symptom, not "a new thing.." so they should accept it within the rules of the tribunal service.
.. apparently!
Let's see how well Take Two goes.. time for another few weeks of worrying and fretting. Oh joy..

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Posted : Thursday, 19 March 2020, 06:34
Jayenkai


This is fine...

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Posted : Wednesday, 25 March 2020, 06:45
Jayenkai
Phone call done.
They're now making their decision and will be letting me know via post.
.. so.. um.. gotta hope my postie's still working, then...

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Posted : Saturday, 28 March 2020, 04:55
Jayenkai
Early morning post.
Good post.
Happy post.

I'm now officially disabled again!
\o/yeay\o/

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Posted : Saturday, 28 March 2020, 05:04
rockford
...
Posted : Saturday, 28 March 2020, 05:34
spinal